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Scared Approximately Operation To Have Colon/LG Intestines Removed?
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Hi, Im 24 years old and for years I have had issues with my bowel movements. basically I rarely have any. I can go for weeks and not have one. My large intestines and colon just do not operate, no motility and no fluid secretion. I think its called colon inertia.But this has caused me to become so backed up that my stomach is filled with rock hard stool that I cannot pass. it becomes rock tough because the intestines doesnt secrete any of the mucus to soften the stool and keep it moving. Ive had to go under general anesthesia many times to be manually disempacted. Its fairly embarrassing but not something i have any control over. From doing this for years my colon has become so stretched out and damaged, its inflamed larger than it should be, alot of scar tissue built up too. My only option now is that they are going to remove my large intestines and colon and maybe even part of the rectum (because there is muscle damage) and then have my small intestines reconnected to the rectum and also a j pouch formed. I will most likely have a bag until it heals, then have the surgery to receive rid of the bag. Im writing on here because Im absolutely Terrified. Im only 24 yrs old and he says if i dont have this surgery that whether my muscle receive any more stretched i will have no control over my bowels. thats a scary thought. But this surgery is scaring the living daylights out of me. Im looking for anyone who has had this operation to give me some advice as to what to expect. did it help you? was it worth it? any complications? All i keep thinking is what if it doesnt work or causes more issues? God gave you those organs for a reason and its not like once they take it out, they can put them back in if need be. being so young im scared of having the bag, i know it should just be temporary but im nervous that with my luck something will happen and it will become permanent. Its so embarrassing, I dont want to let any of my friends know. my family are the only ones who know. I am worried about how often I will have to use the bathroom after, im nervous about the pain. how bad is the hurting? i'll be in the hospital for approximately a week and in recovery at domestic for 2 or 3 months. Ive become so depressed and anxious about this. I really need some help and kind words and I need to hear from someone with experience what life is going to be like while recovering from the surgery and what life is going to be like after i heal. Please any help, I would be so appreciative. because Im a nervous wreck about this., I am scheduled for it in about a week. Please help me.
also i have read some places that it causes sexual dysfunction. how so?
Well, life seems to have dealt you a difficult hand here. But all is not lost, and you're not the only person to face something similar. Colorectal cancer patients frequently have similar surgery. The surgeon brings out what's left of the intestine to an opening in the abdomen. A plastic pouch is glued over this opening, and your stools gather in this pounch. Since the function of the large intestine is to reabsorb the water from the stool and form it into a firmer material, you can expect that your stools would then be more liquid. It is a little inconvenient, and I can't tell you the exact number of such patients in the country, but it does come through the hospital on a pretty regular basis, so I know it's not an uncommon operation. What you make of your life after the surgery is up to you, but there are support groups available everywhere, where you can gather with similar patients and lend each other support. There is also a lot of educational material out there on living with an ostomy bag, and I don't know why your surgeon hasn't started you reading on this correct now. It is a pleasant way to live? Yes, but it's much better than the alternative. And you can live with it. You'd be very surprised if you knew how many people you interact with every day who are wearing ostomy pouches. As for your sex life, that really shouldn't change, provided you have a loving and understanding partner who is accepting of your situation. There should be no interruption of sensation, ability to orgasm, or anything related. Your sexual organs are not touched or altered during the surgery, so you should be fully functional. Best of luck to you in your ordeal. I suspect you'll come through it fine. And ask approximately support groups!
These are questions for your surgeon. As well, do some research on the internet on this condition... colon inertia.
EDIT: And in your place, I'd for certain get a second opinion...and a third and a fourth.
I've had some big surgeries, and I went to several surgeons before anyone cut on me, hon.
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Hi Renee. It's understandable that such an operation would be scary to the patient. First, a few questions. Have the doctors ruled out Hirschprung's disease? Whether you had this, the nerve plexus running through all or part of your colon is lost, and such surgery is probably essential. Secondly, have you sought a second opinion? Numerous major hospitals have a multidisciplinary clinic devoted to problems similar to yours.
After surgery you will probably have frequent movements into your bag, but these generally become less frequent as time passes. Ditto for when the bag is removed. Sorry I can't help with the question regarding sexual dysfunction.