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my parents are scheduling me for an appointment at a hurting clinic but am unsure what to expect? heres some background info:

i am a 16 year old male who was diagnosed with Jra (arthritis) at age 2 along with osteoporosis. At age 7 things started to go down hill. my condition became more involved and i started having increasing pain. uveitis also began scarring my pupil closed to approximately 3mm wide and later developed glaucoma. i have tried any and every anti inflamitory drug known to guy. at 14 the qaulity of life was so poor i was approved for a autologist stem cell transplant. 30 days prior to beginning treatment i became very sick which prompted testing of all sorts. they discovered that i had blau's syndrome. there are less than 2000 people with this syndrome. it is a mutation of the card15/NOD2 gene. it basically means that my severe arthritis and uveitis is cause by a genetic malfunction which means a stem cell transplant would have had no chance at working. i have also tried many different natural programs which showed some results but were way to involved to continue. due to my illness i have a hard time moving which makes it tough to build muscle. doctors have told me that my bones are basically dangling from my body. i am in constant and extreme hurting nearly all the time. i dont have many friends due to depression and my illness. my life is basically trying to deal with my hurting. when i go to school all my focus is on trying to not show pain as i move. as you may know people with chronic hurting dont always show it and can seem almost normal. i feel as whether i am at the end of my rope. i have done all kinds of treatments to combat my illness to no avail. one of my legs is shorter than the other due to breaking my leg twice in the same spot. which causes bad back hurting all the time. i have one of the top rheumatologists in illinois and there is not much more they can do. all they ever want to do is just put me on more prednisone. i need to grow!!!! (5'' 3' they think because i am young i am not in that much pain. it is so difficult to live my life when every moment is filled with hurting. all my muscles spasm and severely hurt all the time. it is like no one understands besides my parents. i am currently taking:

Celebrex 200mg
Humaira methotrexate injection- 25mg
prednisone 40mg

SOMA - 250mg - 3 times a day
Tramadol 100mg (i hate it)
endocet 7.5mg/325mg (occasionally)

i also self medicate with marjuana before bed to help sleep. what is there left for me to do? i am doing Pt already. but what can i expect when i go there? i dont want them to think that i am just looking for pills. i doubt they will beleive that i am in as much pain as i say i am. all my other docs expect me to deal with the hurting but my quality of life is next to nothing. i have done all there is.